The Neurizon Neuromodulation Database was originally founded as a public research project and financed by research grants. The database, however, quickly proved very useful for implant and patient management, thus enabling cost benefit analysis of treatments.

The Neurizon Neuromodulation Database has now grown far beyond its more modest beginning, and in order to keep improving and expanding the database, we formed the company, Neurizon, whose sole purpose it is to develop and improve the database.

The database will continue to be provided free of charge. New features and expansions done by request are financed by the users, organization or company making the request:

We offer to generate specialized reports, for a fee, to users or industry. Two important notes on this:

  1. The users already have access to all their own data via their Admin. We can only offer to analyze them.
  2. We offer tailored reports based on data in the system provided by the owners of the data. We are only able to access and use the data if explicitly permitted by the data owners. Profits from selling the reports will be shared between the data owners and Neurizon."

We also offer specialized tools for the database, like apps, certain service modules, etc., that are not essential for basic usage of the database, but will provide a help in the daily use, can be provided at an additional subscription cost.

We offer to generate specialized reports, for a fee, to users or industry. Two important notes on this:

  1. The users already have access to all their own data via their Admin. We can only offer to analyze them.
  2. We offer tailored reports based on data in the system provided by the owners of the data. We are only able to access and use the data if explicitly permitted by the data owners. Profits from selling the reports will be shared between the data owners and Neurizon."

We also offer specialized tools for the database, like apps, certain service modules, etc., that are not essential for basic usage of the database, but will provide a help in the daily use, can be provided at an additional subscription cost.

The Neurizon Neuromodulation Database is a web-based database for everyday clinical use, research, and quality assurance within the neuromodulation field.

Originally named the Aarhus Neuromodulation Database, the database was founded in the clinical and academic environment of a university hospital out of a desire both to improve the everyday clinical treatment of patients, and to provide the kind of treatment data quality that can only be achieved by a large, standardized registry.

The numerous modules cover detailed patient characteristics and core treatment parameters, including procedure-related details and complications. It also features recording of key success parameters for follow-up of the treatment such as pain intensity, work status, and quality of life. Based on tailored straight-forward input forms, the Neurizon Neuromodulation Database is quick and easy to use, and it covers all relevant parameters for full patient management and for continuous monitoring and research. It is web-based, programmed using industry standards to ensure scalability and performance, and hosted on a commercial server with full traffic encryption.

The Neurizon Neuromodulation Database is intended for international collaboration, and our colleagues in the field of neuromodulation are invited to use the database in their own practice as a free clinical tool.Independent mirrors of the database can be set up, keeping data local and confident.

Yes. There is a fully functional demo database that is identical to the production database, except it contains no real patient data.

For a free user account to the demo database, send an email to info@neurizon.dk

The demo database can be found at https://www.neuromodulation.dk/Demo/

To guide new users – and to ensure everyone enter their data in a uniform fashion – we have made a set of instruction videos and made them publicly available at the Neurizon Youtube channel.

The videos provide practical examples of data entry as well and explain the rationale and philosophy behind the database structure.

From the very beginning, the Neurizon Neuromodulation Database has been designed as a tool to facilitate international collaboration, research, and improvement of the quality of neuromodulation treatments. Therefore, it has been free to use from the very beginning, and it is intended to stay that way.

However, we ask a fee of €1000/year per mirror to cover hosting, traffic, backup, and technical support. Note that this amount is a flat rate per mirror, independent on how many centers and users share the same database (eg. the 4 Danish centers all use the same database, meaning that the yearly rate is only €250 per center).

The Neurizon Neuromodulation Database has been running since 2011, and has been steadily increasing its number of users.

It has undergone numerous expansions and improvements, and it’s continuously being improved.

Originally conceived as a public research project, it is now being managed by a company formed by four people with a keen interest, personally and professionally, in the database. 

We host the databases at a commercial host (physically located in Denmark, but independent from Neurizon).

This means that we can provide reliable, secure hosting at a very low rate (see Costs above).

If you need to host the database in your own servers, please contact us for further details regarding pricing and support for a self-hosted solution.

The design philosophy of the Neurizon Neuromodulation Database has been to aim for a national server for each country.

This includes two fundamental, intended, points:

  1. All users have access to all data on each individual patient. This is aimed at the database’s use a clinical tool, and is implemented because patients often move around and therefore switch treatment center. Also, some patients get implanted at one center, and then followed up by a different one, and both centers need to be able to exchange information.
    This means that everyone involved in the treatment of a patient should be able to access, and add to, the information for that patient.
  2. The administrator (“Admin”) has access to all data in the database. This is aimed at the database’s function as a research tool, and is implemented because it makes much sense to have one person being able to gather and analyze the collected information on all patients within the national database. This also solves the problem with the duplicate entries that would occur if more than one center independently registered information on the same patient.
    This means that one person (the Admin) can technically see what everyone else registers in the national database, which involves a great deal of trust in the Admin.

Two important notes:

  1. While we encourage national databases, it is by no means necessary. The Neurizon Neuromodulation Database can also just as easily be set up to cover a region, a city, or a single institution.
  2. Note that other Admins (including the Danish Admin) do not have access to the data contained in other mirrors of the database.
    • This means that the way that Morges, Switzerland, can compare data with Odense, Denmark, is by having the Swiss Admin make an extract of the agreed Morges data, and share those data with data from Odense provided by the Danish Admin in the same fashion.

Currently the Neurizon Neuromodulation Database fully covers the following neuromodulation treatments:

  • Spinal Cord Stimulation (SCS)
  • Dorsal Root Ganglion Stimulation (DRG)
  • Peripheral Nerve Stimulation (PNS)
  • Peripheral Nerve Field Stimulation (PNfS)
  • Intrathecal Drug Delivery (ITDD)

Numerous improvements and expansions to user interface, functionality, and scope of the database are planned. A regular newsletter is sent to a list of people with interest in the database project. If you want to be included in the list, please send an email to info@neurizon.dk.

If you have special requests for the database (e.g. specific questionnaires, treatment paradigms, etc.), feel free to contact us at any time. Note that you will be asked to provide financing for expansions done per request (see “How is the Neurizon Neuromodulation Database financed”).

The database is hosted on a secure, commercial server using full traffic encryption.

All users have their own unique user login, and all activity is logged.

The hosting server provides full backup.

Currently there are versions of the Neurizon Neuromodulation Database running in:

  • Denmark (Admin: Dr. Kaare Meier)
  • Switzerland (Admin: Dr. Christophe Perruchoud)
  • Germany #1 (Admin: Prof. Jan Vesper)
  • Germany #2

 

We very much appreciate any financial support, be it from individuals, organizations, institutions, or industry, who share our goal: To provide data on neuromodulation treatments in a real-life setting, and to help clinicians provide the best possible care for their patients.

We are always ready to look a suggestions for additions to the database, also from the industry.

It’s important to note, however, that the Neurizon Neuromodulation Database has, from the beginning, been independent of commercial interests. Our ambition is to provide the best, most complete, and most accurate data on neuromodulation treatment, and we will not endorse, promote, or otherwise favor specific treatments or products.

The database is built in a modular, generic fashion. This enables us to reuse the concepts from the neuromodulation database to create databases for other medical fields. Please contact us if you are interested in implementing a customized database for your specific needs.

Kaare Meier
Department of Anesthesiology, Aarhus University Hospital, Denmark.
Extensive clinical and scientific experience with Spinal Cord Stimulation for chronic pain. Original designer of the database.

Jens Christian Hedemann Sørensen
Department of Neurosurgery, Aarhus University Hospital, Denmark.
Extensive clinical and scientific experience with Spinal Cord Stimulation for chronic pain and with Deep Brain Stimulation for movement disorders.

Mattias Rasmusson
Evibase, Boston, Massachusetts, USA.
Extensive experience with clinical databases.

Morten Flink
ITmedico, Aarhus, Denmark.
Extensive experience with clinical databases.